Working Group Members

Co-Chairs:

  • Diana W. Bianchi, M.D.
    Director
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Lawrence Brody, Ph.D.
    Division Director
    Division of Genomics and Society
    National Human Genome Research Institute (NHGRI)
     
  • Gary H. Gibbons, M.D.
    Director
    National Heart Lung and Blood Institute (NHLBI)
     
  • Douglas Lowy, M.D. 
    Deputy Director​
    National Cancer Institute (NCI)

Leadership Group: 

  • James N. Coulombe, Ph.D.
    Working Group Coordinator
    Chief, Developmental Biology and Structural Variation Branch (DBSVB)
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Jaime M. Guidry Auvil, Ph.D.
    Director
    Office of Data Sharing, Center for Biomedical Informatics and Information Technology
    National Cancer Institute (NCI)
     
  • Adam Felsenfeld, Ph.D.
    Program Officer
    Division of Genome Sciences
    National Human Genome Research Institute (NHGRI)
     
  • Lu Wang, Ph.D. 
    Chief, Translational Genomics Research Branch
    Division of Extramural Research
    National Institute of Dental and Craniofacial Research
     
  • Jonathan R. Kaltman, M.D.
    Medical Officer
    Heart Development and Structural Diseases Branch
    National Heart, Lung, and Blood Institute (NHLBI)
     
  • Malcolm A. Smith, M.D., Ph.D.
    Medical Officer
    Cancer Therapy Evaluation Program
    National Cancer Institute (NCI)
     
  • Huiqing Li, M.D., Ph.D.
    Program Officer 
    Heart Development and Structural Diseases
    Division of Cardiovascular Sciences
    National Heart, Lung, and Blood Institute (NHLBI)
     
  • Valerie Cotton
    Program Manager and Contact 
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
  • Danielle Daee, Ph.D.
    Program Officer 
    Epidemiology and Genomics Research Program (EGRP)
    National Cancer Institute (NCI)

  • Charlene Schramm, Ph.D.
    Program Officer
    Division of Cardiovascular Sciences/Heart Development and Structural Diseases Branch (HDSD)
    National Heart, Lung, and Blood Institute (NHLBI)

Working Group Members: 

  • Cheryl Boyce, Ph.D.
    Program Officer
    National Institute on Drug Abuse (NIDA)
     
  • Abee Boyles, Ph.D.
    Program Officer 
    National Institute of Environmental Health Sciences (NIEHS)
     
  • Regina Bures, Ph.D. 
    Program Director
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Alison Cernich Ph.D.
    Deputy Director
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Ricardo R. Cibotti, Ph.D.
    Program Officer
    National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
     
  • William Dunty, Ph.D.
    Program Officer
    National Institute on Alcohol Abuse and Alcoholism (NIAAA)
     
  • Tuba Fehr, Ph.D.
    Program Officer
    Developmental Biology and Structural Variation Branch
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Daniel Gossett, Ph.D.
    Program Officer
    National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
     
  • Kimberly A. Gray, Ph.D.
    Program Officer
    National Institute of Environmental Health Sciences (NIEHS)
     
  • Deborah B. Henken, Ph.D.
    Program Officer
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Keith W. Hoots, M.D.
    Division Director, Division of Blood Diseases and Resources
    National Heart, Lung and Blood Institute (NHLBI)
     
  • Deborah Hoshizaki, Ph.D.
    Program Officer
    National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
     
  • Mary Jenkins, Ph.D.
    Health Scientist
    Centers for Disease Control and Prevention (CDC)
     
  • Emir Khatipov, Ph.D.
    Program Officer
    National Institute of Dental and Craniofacial Research (NIDCR)
     
  • Erika Kim, Ph.D.
    Biomedical Informatics Program Manager
    Cancer Informatics Branch
    National Cancer Institute (NCI)
     
  • Sheran Law, Ph.D.
    Referral Officer
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Sara Lin, Ph.D.
    Program Officer
    National Heart, Lung and Blood Institute (NHLBI)
     
  • Tania Lombo, Ph.D.
    Program Officer
    Environmental Influences on Child Health Outcomes (ECHO)
    Office of the Director
    National Institutes of Health (NIH)
     
  • Amy C. Lossie, Ph.D.
    Program Director
    Genetics, Epigenetics and Developmental Neuroscience Branch
    National Institute on Drug Abuse (NIDA)
     
  • Kimberly McAllister, Ph.D.
    Program Officer
    National Institute of Environmental Health Sciences (NIEHS)
     
  • Oleg Mirochnitchenko, Ph.D.
    Program Officer
    Office of the Director (OD), Office of Research Infrastructure Programs (ORIP)
    National Institutes of Health (NIH)
     
  • Mahua Mukhopadhyay, Ph.D.
    Program Officer
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Pankaj Qasba, Ph.D.
    Program Officer
    National Heart, Lung and Blood Institute (NHLBI)
     
  • Afshin Parsa, M.D., M.P.H
    Program Officer
    National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
     
  • Robert Riddle, Ph.D.
    Program Officer
    National Institute of Neurological Disorders and Stroke (NINDS)
     
  • Lillian Shum, Ph.D.
    Director, Division of Extramural Research
    National Institute of Dental and Craniofacial Research (NIDCR)
     
  • Heidi J. Sofia, Ph.D.
    Program Director
    Division of Genomic Medicine
    National Human Genome Research Institute (NHGRI)
     
  • Kathryn Stein, Ph.D.
    Health Specialist 
  • Genomic Program Administrator
    National Institute of Dental and Craniofacial Research (NIDCR)
     
  • Reiko Toyama, Ph.D.
    Program Officer
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Tiina Urv, Ph.D.
    Program Officer
    National Center for Advancing Translational Sciences (NCATS)
     
  • Frosso Voulgaropoulou, Ph.D.
    Program Officer
    National Institute of Allergy and Infectious Diseases (NIAID)
     
  • Cathy Wedeen J., Ph.D.
    Scientific Review Branch
    Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
     
  • Anastasia Wise, Ph.D.
    Program Officer
    National Human Genome Research Institute (NHGRI)
     

Data Sharing Contact:            

Vivian Ota Wang, Ph.D.        
Kids First Data Access Committee Chair 
NCI Office of Data Sharing
 

NIH Office of Strategic Coordination Representation:

  • Concepcion Nierras, Ph.D.
    Program Leader
    Office of Strategic Coordination
    Division of Program Coordination, Planning, and Strategic Initiatives
    Office of the Director
    National Institutes of Health (NIH)
     
  • Nicholas A. Leake, MS
    Program/Management Analyst
    Office of Strategic Coordination
    Division of Program Coordination, Planning, and Strategic Initiatives
    Office of the Director
    National Institutes of Health (NIH)
     
  • Danyelle Winchester, Ph.D.
    Health Specialist
    Office of Strategic Coordination
    Division of Program Coordination, Planning, and Strategic Initiatives
    Office of the Director
    National Institutes of Health (NIH)
     

This page last reviewed on September 15, 2020