The Common Fund’s Undiagnosed Diseases Network (UDN) is a research study to improve the level of diagnosis of rare and undiagnosed conditions. In the United States, it has been estimated that approximately 25 million Americans suffer from a rare disorder. The UDN established a nationwide network of clinicians and researchers who use both basic and clinical research to uncover the underlying disease mechanisms associated with these conditions. In its first 20 months, the UDN accepted 601 participants undiagnosed by traditional medical practices. Of those who completed their UDN evaluation during this time, 35% were given a diagnosis. Many of these diagnoses were rare genetic diseases including 31 previously unknown syndromes. The UDN is currently accepting participant applications..
- Twelve Clinical Sites (including the NIH UDP)
- Coordinating Center
- Sequencing Core
- Two Model Organisms Screening Centers
- Metabolomics Core
- Central Biorepository
The goal of the Common Fund Program is to form a sustainable national resource to diagnose both rare and new diseases, advance laboratory and clinical research, enhance global coordination and collaboration among laboratory and clinical researchers, and share resulting data and approaches throughout the scientific and clinical communities.
Who is in the Network?
The UDN is a group of clinical and research centers across the United States. More information about the centers that make up the UDN can be found here.
For more information about the UDN or application process, individuals can contact the UDN Coordinating Center by:
- Toll-free from USA, Canada, Mexico: 1-844-RING UDN (746-4836)
- From all other countries: 1-617-432-2344
Or Visit the UDN Coordinating Center Website
This page last reviewed on October 23, 2020